Hello there, I am 18 and I have suffered from Fibromyalgia since I was 15. The pain and sleep issues forced me to leave school. I had a few questions about sleep relating to Fibromyalgia and about how Zeo could work for me. It's a bit long but I am desperate for some answers. Thanks very much in advance to anyone who takes the time to read this.
Here are some facts about my sleep-
I sleep anywhere from 11 - 15 hours a night (I say night but it is usually light out when I sleep). Usually it is 12 hours. My sleep is completely backwards, my days are at night and I sleep all day. And some times my day is when it is light out, but it doesn't last long. I used to be able to "push it" or force a regular sleep scheduale for a night if I had to to go some where the next day (if I had a few days to get my sleep on track) but I can't anymore. I'm always tired, I used to have 22 hour days and would experience strange "highs" of energry in my "evenings". Then I would sleep for 18 hours. Lately I only have 13 - 14 hour days, while sleeping for 11 - 15 hours nightly. I recently started weaning of a synthetic opiod pain killer called Tramadol / Ultram and went through horrible withdrawal which may be why my sleep has changed. I also have sleep paralysis waking and falling asleep from time to time.
Other stuff you probably don't want to know :)
I had a test done to check my cortisol levels and they were completely backwards with a big spike about 2 hours before I would sleep. My hormones are also completely off in every respect. I don't know the details of the hormone test, but my doctor said she had never seen a test so backwards before. My serotonin is very low, also adding to the crappy withdrawal I had with Tramadol. I can't take an SSRI. I've had horrible experiences with them.
I've done all the common things doctors have told me like no TV, showers, good bed, temperature, darkness. I've tried Paul McKenna's system. I've tried things like Ambien (worst decission ever). Tylenol PM just makes me go to sleep faster which isn't my issue. I can fall alseep fine. Plus any sleep aid causes me to have Sleep Paralysis. Nothing makes my sleep feel like I accually slept. I just feel like I've been unconcious but not "sleeping" if that makes any sense. I don't recall waking at all during the night though.
Annyyywayy, I just wondered if anyone could tell me what I am missing. Something should be causing this and my current doctor is at quite a loss to explain it. I also wondered if Zeo would be a good way to monitor my sleep, even though I sleep for so long. Would that screw with the ZQ? Or can I still use it? And if I can use it, how would knowing my ZQ benefit me?